Day 119 - WYATT'S BIRTHDAY, PART 8OF15

THE STORY OF AYN VAN DYK

As told by her father Derek Hoare

Part Eight of Fifteen

Day 119 - WYATT'S BIRTHDAY, October 12th, 2011

October 11-12, 2011

Oct 11

Argggg! I missed two days again, bad too because I have been up late and could have made the time, but it slips my mind when prioritizing on the fly. Well here now. Was a good day for me made progress on several levels, and thought over a lot of things.

Tomorrow I will try to assemble a list of each thing I would like to accomplish prior to the 18th, won't likely be able to get it all done, but will juggle through what I can. Have to simultaneously begin to set up ABA programs, in two locations... now one being in the home that is no prob, however exactly how I go about implementing a program for Ayn in a household I haven't met will be rather hard.

Regardless of my stance on Ayn I am going to have to meet the FP (foster parent) soon I think, not sure how else to do it. These programs are a significant priority and I would like to get as much done on them as possible by myself before the consultant arrives. Have met some great people on the group (FB page) to help with this... I hope they're ready for me to pester them.

I am very excited about these programs as for so many years I have wanted this sort of thing, but never have been financially able. I remember back when we were running the under six programs for Ayn and Lyric in the home 30 hrs per week... we used Michelle Auton who had been battling the government over providing necessary therapy for her autistic son. Was quite the primer for what was to come, have been fearful of what services would be available to them as they entered into school. 

Our funding is cut under the guise that the school is too make up the slack, the reality is that schools do not match up to intensive ABA, not their fault per se, they are simply not provided the resources to accomplish the task. They too struggle tooth and nail for many kids to get more services or to get help with situations they lack the expertise to address.

Ayn's school was filled with dedicated caring people, but they could scarcely get access to any expert services for her... this has to be fixed. A condition which is clearly a medical one yet gets treated as a problem for the schools... almost every year I am in to see a doctor to have them sign another form saying my kids are autistic, yet their therapy is not covered under our medical system. Yet they will quickly involve the medical community to drug them, clearly by force if necessary when the school proves to be unable to cope with certain autistic behaviours like violence or self injury... scary... frustrated...things must change.

Oct 12
Was Wyatt's birthday today, we spent alot of time together, talked about Ayn and what we would do once she was back home. Tried to get him to focus on what was in his power to change or improve upon, that Ayn will be coming home and we will do everything we can to ensure that something like this never happens again. He has such a beautiful and pure sense of right and wrong, but does not understand the sociological nuances of empowering that which is right without allowing coercion to simply persist.

A lot of people understand right and wrong but do not understand that to force someone to be "right" is in itself wrong.

I hope to continue this fight long after Ayn is returned so that neither she nor any other has to face this sort of treatment in the future. It is not what is being done to Ayn that is wrong, so much as why and how. There are children who may benefit from this, but that decision should be left up to the family not forced upon an entire populous... though not every one of us will ever be subjected to it, we are living with a system which believes it has the right to do this to its people against their will.... The system is wrong, we built it, we support it, and we can abolish it.

To replace a tyranny of the minority with a tyranny of the majority is still tyranny.

My daughter is being held against her will and mine, all with the intent of making her more manageable, to force "help" upon her... all the while acknowledging they do not know her and do not even care to hear about her... yet they know best and I can sit down shut up and wait my turn. Grr

Many thanks to Jean Nicol for this Collection of Derek's entries from Ayn's Facebook page 

Also downloadable in its entirety at this SendSpace site